- Education Topics
- Achievement Gap
- Alternative Education
- Assessment & Evaluation
- Educational Leadership
- Educational Philosophy
- Educational Research
- Educational Technology
- Educational Videos
- Education Economics
- Education Environment
- Education Issues
- Education Policy
- Education Psychology
- Education Reform
- Education Theory
- Education Worldwide
- Federal Education Legislation
- Homeless Education
- Homeschooling in the United States
- Migrant Education
- Neglected/Deliquent Students
- Pedagogy
- Sociology of Education
- Special Needs
- National Directories
- After School Programs
- Alternative Schools
- The Arts
- At-Risk Students
- Camps
- Camp Services
- Colleges & Universities
- Counties
- Driving Schools
- Educational Businesses
- Financial Aid
- Higher Education
- International Programs
- Jewish Community Centers
- K-12 Schools
- Language Studies
- Libraries
- Organizations
- Preschools
- Professional Development
- Prom Services
- School Assemblies
- School Districts
- School Field Trips
- School Health
- School Supplies
- School Travel
- School Vendors
- Schools Worldwide
- Special Education
- Special Needs
- Study Abroad
- Teaching Abroad
- Volunteer Programs
- Youth Sports
- For Schools
- Academic Standards
- Assembly Programs
- Blue Ribbon Schools Program
- Educational Accreditation
- Educational Television Channels
- Education in the United States
- History of Education in the United States
- Reading Education in the U.S.
- School Grades
- School Meal Programs
- School Types
- School Uniforms
- Special Education in the United States
- Systems of Formal Education
- U.S. Education Legislation
- For Teachers
- Academic Dishonesty
- Childcare State Licensing Requirements
- Classroom Management
- Education Subjects
- Educational Videos
- Interdisciplinary Teaching
- Job and Interview Tips
- Lesson Plans | Grades
- Professional Development
- State Curriculum Standards
- Substitute Teaching
- Teacher Salary
- Teacher Training Programs
- Teaching Methods
- Training and Certification
- For Students
- Academic Competitions
- Admissions Testing
- At-Risk Students
- Career Planning
- College Admissions
- Drivers License
- Educational Programs
- Educational Television
- Educational Videos
- High School Dropouts
- Higher Education
- School Health
- Senior Proms
- Sex Education
- Standardized Testing
- Student Financial Aid
- Student Television Stations
- Summer Learning Loss
The International Rett Syndrome Foundation
Basic Information
Address: 4600 Devitt Drive
Cincinnati, OH 45246
Phone Number: 1-800-818-7388
Fax Number: 1-513-874-2520
Email: admin@rettsyndrome.org
Action Shots
* There are currently no photos associated with this listing.
Additional Information
Executive Director: Steven E. Bajardi
Mission Statement:
To fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life
for those living with Rett syndrome by providing information, programs and services.
Membership Fee: http://www.rettsyndrome.org/index.php?option=com_acctexp&task=subscribe&Itemid=656
Hours of Operation/Schedule: Monday - Friday 8a.m.-5p.m. E.T.
Events:
IRSF Info, News and Events:
http://www.rettsyndrome.org/index.php?option=com_content&task=blogcatego...
Conferences/Speakers: The Annual Family Conference and the Science Symposium:
http://www.rettsyndrome.org/index.php?option=com_content&task=blogcategory&id=124&Itemid=990
Support Groups: For Families http://www.rettsyndrome.org/index.php?option=com_content&task=blogsection&id=7&Itemid=378
Regional Representative Program: http://www.rettsyndrome.org/index.php?option=com_content&task=view&id=484&Itemid=625
Grandparents Network: http://www.rettsyndrome.org/index.php?option=com_content&task=view&id=501&Itemid=1004
Dads Network: http://www.rettsyndrome.org/index.php?option=com_content&task=view&id=602&Itemid=1021
Parents of Males with MecP2 Mutations Network: http://www.rettsyndrome.org/index.php?option=com_content&task=view&id=655&Itemid=1030
History:
The International Rett Syndrome Foundation (IRSF) was formed on July 1st, 2007 when the International Rett Syndrome Association (IRSA) and the Rett Syndrome Research Fund (RSRF) consolidated resources in a historic merger.
The International Rett Syndrome Association was formed in 1984 when a determined group of parents (led by Kathy Hunter) banned together to try to fund research for cures and treatments, support other families with Rett syndrome, and raise public awareness. Over the years the organization raised tremendous public awareness, brought life-changing care to families, and helped foster and fund some significant research breakthroughs (including the discovery of the MECP2 gene that causes Rett syndrome).
The Rett Syndrome Research Foundation was formed in 1999 by a passionate group of parents who wanted to more aggressively and exclusively pursue biomedical research to accelerate the discovery of treatments and a cure. Their achievements in funding new research, bolstering strategic studies, unifying and focusing the research community, and expanding the scope of knowledge was unsurpassed (including the discovery that the most symptoms of Rett syndrome may one day be reversed).
Both organizations had a proud and illustrious history of making significant progress towards bringing answers, insight, and care for loved ones with Rett syndrome; however, although both organizations were fighting for the same cause there were sometimes redundancies and challenges in creating unity with all the communities.
It became clear that, since Rett syndrome is such a rare disorder and that resources were limited, a more unified effort to the challenges was the wiser and more strategic course of action. In other words, by working together the community could get more done in less time. This philosophy spurred the leaders of both organizations to come together and discuss the potential of a single, unified organization.
It was quickly apparent that, at their core, both sides shared a similar mission: curing Rett syndrome and helping improved those living with Rett syndrome’s overall quality of life.
The response from the Rett syndrome community was overwhelmingly positive and supportive.
Detailed Organization Information:
The International Rett Syndrome Foundation (IRSF) is a 501(c)(3) non-profit corporation established in July 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association.
IRSF is the largest private source of funds for biomedical and clinical research on Rett syndrome. The Foundation directs 96% of each dollar donated directly to program services. All donations specifically earmarked for research will be honored.
IRSF believes the fastest way to a cure and treatments includes making significant and strategic investments in Research while bolstering Family Support, Public Awareness, and Advocacy programs.
The goal of IRSF is to not only fund the highest quality research, but also to focus on projects that will accelerate the speed with which basic science discoveries are translated into clinical application for patients with Rett syndrome.IRSF organizes and sponsors the annual Rett Syndrome Symposium which gathers researchers and clinicians from around the world to exchange the latest information and set new research directions.
IRSF organizes and sponsors the annual International Rett Syndrome Foundation Conference which provides continuing educational opportunities and connections to parents, family members, therapists, teachers, physicians and other individuals involved in the day-to-day care of individuals with Rett syndrome. Each year the Conference is held in different parts of the U.S.
IRSF publishes a variety of print, online, and media materials aimed to help provide the best and most current information to families and extended caretakers of loved ones living with Rett syndrome.
IRSF maintains not only a database of individuals with Rett syndrome, but also of physicians familiar with the disorder. From this international database, IRSF is capable of projecting accurate statistics, patient referral and family networking.
Slogan: Your Help is Our Hope!
National Directories
- Adult Schools
- Adventist Colleges
- Adventist Schools
- After School Programs
- All Boys Schools
- All Girls Schools
- Alternative Programs
- Alternative Schools
- American Colleges & Universities Abroad
- American Schools
- Amusement Parks
- Armenian Schools
- Art Colleges
- Art Schools
- Autism Schools
- Baptist Colleges
- Baptist Schools
- Beauty Schools
- Bible Colleges
- Bilingual Immersion Program
- Blind Schools
- Boarding Schools
- British Schools
- Business Schools
- Camp Fairs
- Camp Rentals
- Camp Supplies
- Career & Technical Schools
- Catholic Schools
- Charter Buses
- Charter Schools
- Children Hospitals
- Chinese Schools
- Classical Christian Schools
- Classical Lutheran Schools
- Choir Schools
- Christian Schools
- College Fairs
- Colleges & Universities
- Community Colleges
- Counties
- Country Day Schools
- Dance Studios
- Deaf Schools
- Democratic Schools
- Dental Schools
- Dietitians & Nutritionists
- Driving Schools
- Dutch Schools
- Dyslexia Schools
- Early Colleges
- Eating Disorder Centers
- École Française
- Educational Publishers
- Educational Software
- Episcopal Schools
- Essential Schools
- Film Schools
- Financial Aid
- Foreign Language Immersion
- Forestry Colleges
- French Schools
- Friends Schools
- Gap Year Programs
- German Schools
- Gifted Schools
- Graduate Schools
- Greek Orthodox Schools
- Green Schools
- Health Clubs & Gyms
- Heritage Language Programs
- Hindi Schools
- Hispanic Serving Institutes
- Historical Black Colleges
- Hotels/Lodging
- IB World Schools
- Independent Schools
- International Boarding Schools
- International Schools
- Islamic Schools
- Jesuit Colleges
- Jesuit Schools
- Jewish Community Centers
- Jewish Schools
- Journalism Schools
- Korean Schools
- Laboratory Schools
- Land Grant Institutions
- Language Schools
- LEAF Schools
- Latin Schools
- Law Schools
- Libraries
- Library Schools
- Lithuanian Schools
- Lutheran Colleges
- Lutheran Schools
- Magnet Schools
- Medical Schools
- Mennonite Schools
- Mens Colleges
- Military Schools
- Montessori Schools
- Music Lessons
- Nutrition Schools
- Online Colleges
- Online Schools
- Organizations
- Overseas Schools
- Pharmacy Schools
- Playground Equipment
- Postgraduate Schools
- Presbyterian Schools
- Preschools
- Professional Workshops
- Progressive Schools
- Prom Services
- Public Schools
- STEM Schools
- School Assembly Programs
- School Bus Vendors
- School Districts
- School Field Trips
- School Garden Programs
- School Supplies
- School Travel
- School Vendors
- Schools Worldwide
- Semester Schools
- Ski Resorts
- Special Schools
- Study Abroad Programs
- Substance Abuse Centers
- Sudbury Schools
- Summer Camps
- Summer Schools
- Summer Sessions
- Support Services
- Tamil Schools
- Teaching Abroad Programs
- Technical Colleges
- Theaters
- Theological Seminaries
- Therapeutic Schools
- Trade Schools
- Ukrainian Schools
- Virtual Learning Environments
- Voice Lessons
- Volunteer Abroad
- Volunteer Programs
- Waldorf Schools
- Water Parks
- Womens Colleges
- Youth Sports
AF Sitemap
- Education Topics
- Achievement Gap
- Alternative Education
- Assessment & Evaluation
- Educational Leadership
- Educational Philosophy
- Educational Research
- Educational Technology
- Educational Videos
- Education Economics
- Education Environment
- Education Issues
- Education Policy
- Education Psychology
- Education Reform
- Education Theory
- Education Worldwide
- Federal Education Legislation
- Homeless Education
- Homeschooling in the United States
- Migrant Education
- Neglected/Deliquent Students
- Pedagogy
- Sociology of Education
- Special Needs
- National Directories
- After School Programs
- Alternative Schools
- The Arts
- At-Risk Students
- Camps
- Camp Services
- Colleges & Universities
- Counties
- Driving Schools
- Educational Businesses
- Financial Aid
- Higher Education
- International Programs
- Jewish Community Centers
- K-12 Schools
- Language Studies
- Libraries
- Organizations
- Preschools
- Professional Development
- Prom Services
- School Assemblies
- School Districts
- School Field Trips
- School Health
- School Supplies
- School Travel
- School Vendors
- Schools Worldwide
- Special Education
- Special Needs
- Study Abroad
- Teaching Abroad
- Volunteer Programs
- Youth Sports
- For Schools
- Academic Standards
- Assembly Programs
- Blue Ribbon Schools Program
- Educational Accreditation
- Educational Television Channels
- Education in the United States
- History of Education in the United States
- Reading Education in the U.S.
- School Grades
- School Meal Programs
- School Types
- School Uniforms
- Special Education in the United States
- Systems of Formal Education
- U.S. Education Legislation
- For Teachers
- Academic Dishonesty
- Childcare State Licensing Requirements
- Classroom Management
- Education Subjects
- Educational Videos
- Interdisciplinary Teaching
- Job and Interview Tips
- Lesson Plans | Grades
- Professional Development
- State Curriculum Standards
- Substitute Teaching
- Teacher Salary
- Teacher Training Programs
- Teaching Methods
- Training and Certification
- For Students
- Academic Competitions
- Admissions Testing
- At-Risk Students
- Career Planning
- College Admissions
- Drivers License
- Educational Programs
- Educational Television
- Educational Videos
- High School Dropouts
- Higher Education
- School Health
- Senior Proms
- Sex Education
- Standardized Testing
- Student Financial Aid
- Student Television Stations
- Summer Learning Loss